Monday, June 25, 2012

Day 58-61

Wow I am so bad at this. I have missed another 4 days on Haydens blog, Every time I have the Internet I forget to post and every time I remember to post I have no Internet.

Well anyways Hayden is now 2 months old and he is doing very well the Dr. even said the words "when you get to take him home" it is the first time anyone has said that to us. He is on day 5 of his 12 day countdown. They just took him off his caffeine he has to do good with no events for the next 12 days after that it puts him one day closer to coming home. the two main things they are looking for before Hayden gets to come home are no Heart rate drops, no O2 drops, and he has to get his weight up over 4 lbs.

Hayden is on 35 mls. of milk every three hours. also he is still getting fed every other feeding by bottle, that is when he isn't too sleepy. Last time we were told he weighed 3 lbs. and 14 oz.

Please keep Hayden in your prayers that he will keep doing well and that he will get to come home soon.

Thanks everyone

Tim Hilary and Hayden.

Thursday, June 21, 2012

Days 55-57

OK so here goes on day 55-57.

Hayden has been doing very well (but we won't tell him that) cause if we do he gets a big head and shows them just how bad he can be. He has been doing well with his feedings and guess what he finally gets to eat through a BOTTLE twice a day yeah. The first time he ate about 17 mls. with the nurse, the next time he ate about 22 mls.for Hilary, but the last feeding he had I got to feed him and He ate about 27 mls. I was such a proud daddy My little baby boy made me so proud.

They are going to do another blood count tomorrow to see if he is able to bring up his blood count by himself. I have a feeling that he has cause he has not had an event for such a long time.

We wanna thank everyone for joining us on our little adventure, thanks for all your prayers and support we love you all and keep the prayers coming.

Tim Hilary and HAYDEN :-) :-)

Sunday, June 17, 2012

Days 49-54

This is the only recent picture I have of him but he is getting so big and soooo handsome!!!
Sorry that its been so long on the posts everyone, same trouble as we have been having. My computer is still out of service (hopefully now not that much longer since my uncle found out what was wrong with it). So I am currently at my parents house using one of their computers. I have to fill you in on days 49, 50, 51, 52, 53 and today being 54. So I am going to summarize all of the days together.

Ok so, since we last updated, Hayden has had a setback and then made a comeback. He had to go back on oxygen for about a day and a half because they told us that he was not being able to breathe very well since they moved his feeding tube into his nose. They said though that they had to keep the tube in his nose because he would not be able to nurse if it would be in his mouth. Since then, he has managed to come back off the oxygen and to only have a couple of events.

He is still doing pretty well with his feedings. They tried to treat him like a big boy and go to the bolus feedings spread out over an hour with a two hour break but his tummy did not like that at all. He has managed to keep it at a feeding spread over 2 hours with a break of one hour. The main point is that he is no longer on continuous feedings which is a great great accomplishment. He is also doing well with his nursing that he gets to try twice a day which is great! We are really hoping that maybe by next week he will be on all bottle feedings. He also now weighs 3 lbs. and 7 ozs.!!!!!!!!!!!!!!!!! Awesome!!!!!

His biggest problem right now is that he is anemic. They have already given him two blood transfusions and they have helped but he is still too small to keep his blood supply up all by himself. I believe they said that the normal red blood cell count was around 46? (it was either 45 or 46) and that his level was 25. So he needs to make more red blood cells. They don't want to give him another transfusion unless they have to because they said that it sends a signal to his body not to make more. They are hoping that his body will get the hint and start to make more on its own over the next couple of days.

Also, he had another eye exam that is now showing that he is stage 2-3 immature instead of stage 1. Which means it was good because they didn't see any bleeding or anything out of the order, but also means that they will just have to re-check them again in another 2 weeks to see if they have fully matured.

I think that's about all the updates on mister Hayden. He is doing very well and we are hoping that maybe he can come home sometime towards the middle or the end of July. I hope that he doesn't have to stay there till his due date in August since he is making such good progress. Please keep praying for him that he will continue to do well and that he can come home soon. We love you all very much and thank you for following our blog and praying for our little miracle baby!

Tim, Hilary, and Hayden

Monday, June 11, 2012

Day 48

His first outfit!! Way too big even though it is a preemie!


Today Hayden is having another great day! He has not had any more events since he went off his oxygen almost a week ago! He has some ups and downs with his heart rate and oxygen but he has learned now how to bring it back up all by himself and without any help! So he has made great great progress!!

Tomorrow he will be seven weeks old!! YAY! And on Wednesday his gestational age will be 33 weeks. That leaves seven more weeks till his due date. So if he has to stay until his approximate release date (which is his due date) then we have made it halfway through his hospital stay as of Wednesday. He may be able to leave a couple of weeks early if he keeps doing well, but they have told us not to expect that, to expect his due date instead of getting our hopes up.

Bathtime!
He is doing so well with his breathing that there is nothing more to report. He is not needing oxygen and he seems to have learned how to breathe all by himself. So please keep praying that he will continue to do well and continue to stay off his oxygen. His feedings are still continuous but tomorrow they are going to switch back to what they call bolus feedings. This means that they will run his feeding pump over a period of two hours and then give him an hour break before they start another feeding. It just helps his body learn how to get his feedings all at once instead of getting small amounts continuously. They are hoping this will also help him prepare for bottle feedings because he has to be able to get his food into his stomach once every three hours before he can bottle feed. So this is a good step in the right direction and hopefully he will take it well and his problem with reflux will be resolved.

He weighs 3 lbs. and 2 oz. again and they are happy that he has gained that weight back. They said he needs to be about 4 lbs. to 4 and a half before he will be big enough to get out of his isolette and maintain his own body temperature.

Mommy giving Hayden a bath.
We feel like he has made so much progress! They told us when he was born that he had to accomplish 4 major things before he could go home 1.) He had to be able to breathe on his own, 2.) He had to be able to eat on his own, 3.) He had to be big enough to keep up his own body temperature, 4.) He had to be able to do all three of these things at the same time. So far he has accomplished one out of four of these things and he is well on his way to accomplishing the other three. Please continue to keep him in your prayers and keep us in your prayers as well that we will have strength to make it through the other half of his hospital stay. We love you all!!



Tim, Hilary, and Hayden

Sunday, June 10, 2012

Day 46-47


Well today I will try and update you on all the new changes for Hayden for the last couple days. We also have some new pictures for you guys to enjoy (and pictures of Tim's parents getting to hold Hayden).

Yesterday he did pretty well, he gained back another ounce which was really good! That puts him back up to 3 lbs. and 1 ounce! He also did pretty good with his suckling again last night and hopefully sometime this week they will let him start bottle-feeding a little bit. They said that they will start him on one bottle feeding per day and the rest tube feedings and then they will gradually increase him one feeding until he makes it up to taking all 8 of his feedings by bottle. Yesterday they had also increased his feedings to 9 mls. per hour or 27 mls. every three hours.

Today, he has had another great day! I went in and the first thing they told me was "He needs a diaper change and we think its a major stinky!!" So, I changed it and he must have been saving up for me all day! Oh how I wished that Tim had been there to change it and not me (since he has never before in his life changed a stinky diaper). I would've loved to see the look on his face!




Pretty much everything is still the same with him today, he is still getting the same amount of food and he is still doing good breathing on his own. He is having a little trouble with reflux when he eats so that is why they are progressing slower on his feeding process. He is also still on continuous feedings so he has to be able to go every three hours on his feedings before he can bottle feed. Also, I have not had a chance to find out how much he weighs yet so that may be on tomorrow's post.

Its hard to believe that we are already up to 47 days! He will probably be here at least another 47 days before he finally gets home. But that is ok as long as he is healthy and keeps making progress in the right direction. Sometimes it feels endless but we keep trusting God and he is helping us make it through. Through it all, we have to keep remembering to be glad for the small accomplishments and not expecting leaps and bounds. He has done so remarkably well for a baby his size and continues to make the doctors and nurses very impressed with how well he is doing. Please just keep him in your prayers as we still have a long road ahead of us. We love you all!

Tim, Hilary, and Hayden

Friday, June 8, 2012

Day 44-45

OK so I did it again, I missed another day. But I think that it will be all worth it in the end cause we have some great news.

But first lets start with some not as great news. Hayden over the last two days has putting on the pounds. He put on up to 3 lbs. and 2 oz. which he just lost today, I guess he just saves it all in his tiny little stomach and lets it all out at once. So he is now down to 3 lbs. even :-(. My Father stated last night that he had eaten meals bigger then Hayden, and I have to say that goes for me too. lol
       Anyways the nurses have let the grandparents hold Hayden "cause he is doing so well" And they all seemed to love it.

Now to the news you've all been waiting for Mr. Hayden.............................................
is now............................................
OFF ALL HIS OXYGEN
And he is breathing all on his own, and he is doing amazing with it. Now we can't tell him that its gone cause if he knew that then he might get scared.

Thanks everyone for all your prayers and support. Hopefully we will have our little baby boy home with us soon.

We love you all. Tim Hilary and Hayden

I'm sorry we have no pictures for you I am trying to find my memory card reader and I will try to get them up as soon as I can.

Wednesday, June 6, 2012

Day 43

Well well well Hayden has done it again. Not only has he been bumped down from 2 liter to 1 liter on his oxygen ( on which he is doing very well ). But he has hit the magical 3 lbs 1 oz. mark, this baby is growing like there is no tomorrow. They are hoping that in the next week or two he will be off all his oxygen. We can't wait to see what happens next to our little baby boy. So now we have finally made it to 1 lb. gained since he has been born 6 weeks and 1 day ago. It has been uphill both ways for Hayden but he has shown us all that he can make it through anything that life throws at him.

Pray that he continues to do well and that he can get off all his machines and come home soon. And most of all pray that God will be glorified through the whole thing. Thanks for all your continued prayers. We don't have new pictures tonight but we will try to get some more tomorrow.

Tim, Hilary, and Hayden

Tuesday, June 5, 2012

Day 42

So today Hayden is officially 6 weeks old! He has come so far and grown so well! We are so proud of how good he is doing and how strong he is. Don't have much to update you all on tonight, everything is still pretty much the same as it was yesterday.

He is still on his 2 liters of oxygen (and thank the Lord he has been doing very well on it, no events at all since then and we are praying it will stay that way). He also is still on his continuous feedings although they did increase them slightly again today. He is eating almost 25 mls. every three hours now (which is just a little short of an ounce). He is still getting his extra calories to help him beef up a little. Other than that, he is doing pretty much the same. He also didn't gain any weight from yesterday. He still weighs 2 lbs. and 15 oz. One more ounce to go till he crosses the three pound mark!!!

Also, today was great because I got to try letting him suckle a little bit. He is just playing around and getting used to it now but the nurses have told me that its really good for him because it will help make it a little easier for him when it comes time to actually breast and bottle feed. He did really well with it (in my opinion of course hehe) and he seems to really love his pacifier. All of which are good signs that he is getting closer to being able to bottle feed.

Also got some great pictures of my parents holding Hayden for the first time! I got some great pictures of them here on the blog tonight. Timothy's parents will be coming to hold him Thursday for the first time too so it seems this week Hayden will be introduced to both sets of his grandparents! More pictures of this encounter to come on Thurday. Thanks everyone for your prayers and for all your support. You all have been great and we love you very much!




Tim, Hilary, and Hayden

Monday, June 4, 2012

Day 41

YAY!!!!!!!!!!!!!!!!!!!!!!!

I am so happy for once we posted two post in a row without missing a day. Aren't you so proud of me?
Anyways Baby Hayden is doing so well that this is going to be the shortest blog post ever. He is still on room air at 2 liters per min. by his little nasal cannula, and doing amazing He hasn't had an event for at least 3 days. He is tolerating his feeding very well, He is getting 8 liters of milk every hour and its going all the time. He has lost about an ounce in the last two days but that just means his body is digesting it well. He loves to be held, when I get to hold him He is very active and with Hilary He is so relaxed he just sleeps, But as soon as she puts him back He is wide awake.

Thanks for all the prayers keep them coming.

Tim Hilary and Hayden

Sunday, June 3, 2012

Day 40

They had to tape the oxygen tubing to his nose because he was
pulling it out so much!!!


So today Hayden is doing very well! I was told last night that he accomplished quite a feat yesterday....HE FLIPPED FROM HIS BACK TO HIS STOMACH ALL BY HIMSELF!! I was told that one of the nurses went to check on him because his heart monitor had slipped off a little bit and when she went to check on him, he had turned over all by himself. He is such a squirmy baby and a mover! We are so proud of him and he is such a smart baby. Another feat he accomplished last night during the night (that I found out about this morning) was that he managed to get the adjustable part of the nasal cannula (the part that's on the back of his head) into his mouth and was chewing on it! He has such a personality and all the nurses are telling me that I should have named him Houdini instead of Hayden.

To give you an update of how he is doing physically, he is now back down to 2 liters of oxygen and he is still staying on room air. He has not had any events since yesterday morning, so he has made it over 24 hours without having an event! YAY! He has also been increased up to 8 mls. of food every hour. He is still on his continuous feedings but we are hoping soon that he can come off of those and back to being fed every three hours. They have also told me that on Wednesday (when he turns 32 weeks) we can try and experiment with a bottle and see what he does with it. He may not take it but we can at least see how he responds to it. They have also told me that by 34 weeks he should be taking it much more readily and easily. He is also getting an extra 27 calories per feeding to help boost his weight gain. He also is still at the same weight as yesterday, no weight gain today.

We are so proud of him and how he is doing so well! Also as a treat for you blog followers, I have brand new pictures of him and (if I can get it to work) a video of his gymnastics lol. We love you and thank you for all of your prayers!




Tim, Hilary, and Hayden

Saturday, June 2, 2012

Day 38-39

So once again we have skipped a day and for that I am very sorry. We are still trying to get Hilary's computer fixed and haven't had time to post. so i am doing it from work. So baby Hayden is doing well he has gained up to 2 lbs and 14 oz. they just took him down to 2 Lt. of oxygen instead of 2 1/2 his nurse said he is doing well with it. he has had no events today. He has also been bumped his feeding up to 7.9 mls. per hour still on continuous feed. He has started trying to escape from his isolate with no success which makes him try even harder. He had his eye exam and they said the his eyes are developing just how they wanted them to. there are three stages of eye development he is at stage 1 which is fine. They are going to do a follow up in two weeks to make sure they are still going in the right direction.

Thanks to all for keeping him in your prayers.
We will try to post everyday from here on out, but please know if we cant post we will fully update you asap.

Thanks Tim, Hilary and Hayden


I was just thinking of where Hayden has come from, so I am going to post a couple pictures so you can compare them. "LOOK HOW MUCH BIGGER HE IS"